• Manager - SLE & APS Center of Excellence

    Location US-NY-New York
    Posted Date 3 months ago(7/11/2018 9:48 AM)
    Job ID
    Medicine - Medicine - All Openings
    Emp Status
    Regular Full-Time
    Hours per Week
  • Overview

    Manager - SLE & APS Center of Excellence


    The Lupus & APS COE Manager’s primary objective will be to oversee and aid in the execution of the growth, vision and goals of the Systemic Lupus Erythematosus and Antiphospholipid Syndrome Center of Excellence and its affiliated Centers and Clinics (Mary Kirkland Center for Lupus Care).  She/he will report to the Director of the Lupus & APS COE.


    Job Responsibilities:


    Patient Related Duties (Rheumatology Practices and Mary Kirkland Center for Lupus Care: 

    • Meet with all Lupus & APS patients to orient and introduce them to the offerings of the center
    • Facilitate interactions of patients and study coordinators with approval of physicians
    • Coordinate with the nurses to provide one-on-one education to patients interested in learning about Lupus & APS and the center
    • Monitor and facilitate appointments made from the ‘Lupus Fast Track Appointment System’
    • Work with the Lupus/APS Registry & Repository research Coordinator, fellows and Principal Investigators to facilitate recruitment into the Registry
    • Work with Investigators and clinical coordinators to facilitate enrollment of clinical trials and serve as back-up coordinator for some trials
    • Monitor enrollment of all clinical trials and research studies in lupus
    • Facilitate referrals recommended by the patient’s physician to Lupus APS Center programs (Support, Patient Education, Research)
    • Make appropriate referrals to programs (social work,) and other relevant patient educational programs as needed
    • Compile and email weekly Lupus clinic schedules and clinic conference locations
    • Update all Lupus Attending patient sheets following the patients’ visit to the clinic
    • Coordinate weekly Friday Lupus Conferences and organize the monthly special lectures, speakers, and case discussions
    • Update Friday clinic discussion logs and patient sheets following each Lupus Friday Clinic
    • Maintain balanced learning topics for fellows’ Friday clinic conference. Coordinates with the clinic head each Friday. 

    Administrative and Programmatic Duties:

    • Develop and maintain programs and research initiatives to improve care of patients with Lupus and APS
    • Develop and maintain the system that supports education in care of Lupus and APS patients
    • Work with the attending rheumatologists, nurses and social workers, and office personnel to facilitate coordination of patient quality initiatives
    • Maintain master clinic database of patient’s lupus related activities (registry, clinical trials, demographics, appointments, etc)
    • Coordination and administration for the COE Steering Committee Meetings:
      • Organize and attend meetings
      • Work with the COE Steering Committee in a collaborative multidisciplinary fashion to facilitate coordination of patient quality initiatives
      • Take meeting minutes
      • Facilitate follow up discussions post meetings
    • Create quarterly e-newsletters, and newsblasts which includes interviewing contributors, editing content and working with the web team to create templates and out the newsletters electronically
    • Maintain and update patient electronic contact details for e-newsletters and other relevant updates from the center.
    • Promote awareness of our center and of Lupus and APS
    • Create print material to advertise the center
    • Collaborate with the Lupus Research Alliance on their projects to engage patients to participate in clinical trials
    • Maintain and update the content and design of the center’s website
    • Serve as a liaison between center physicians and collaborators in clinical and research activities (ASCVD, nephritis program, etc)
    • Develop and coordinate community outreach activities/program plans and curricula with appropriate faculty and HSS Departments (Education, Social Work, etc)
    • Patient Education & Support Forums sponsored in collaboration with other HSS departments
    • Physician education events
    • Health Fairs or Clinical Trials Fairs
    • Collaborating institutions
    • Presentations to patient groups, support groups and health care professionals. Prepare presentations, posters, etc for annual ACR/ARHP meeting
    • Devise strategies to boost enrollment for clinical trials and observational studies, including finding innovative and effective advertisement tools
    • Develop relationships with outside institutions (ex. CITY MD) to refer their patients with rheumatologic conditions to HSS
    • Catalogue current IRB-approved research studies and trials in SLE and APS with respect to study design (basic science; if clinical: cross-selection, longitudinal); funder; use of Registry; status (recruiting, follow-up only, analysis only); projected timelines; manuscript status (planned, in-progress, under review, published)
    • Maintain current status report, update semi-annually
    • Maintain a list of publications and presentations related to SLE and APS by HSS staff, update semi-annually
    • Coordinate meetings with center members to discuss potential research and education opportunities that the center should pursue
    • Work with leadership of the center to develop and operationalize strategic plans to achieve long-term goals


    • BS/BA Degree Required; Master’s in Healthcare related profession (Public Health, Health Administration) preferable
    • One to three years of experience working in healthcare settings (hospital, clinic setting preferable)
    • Excellent computer skills –Microsoft Office Suite – particularly Excel, PowerPoint, and Access.
    • Exceptional verbal and written communication skills that will be used with patients, health care providers, doctors and faculty
    • Good interpersonal skills
    • Bi-lingual (Spanish) preferable
    • Ideal candidate will be a self-starter, who takes initiative to get programs and projects going. Someone who is interested in advancing science, outcomes research and patient care goals.  Candidate should be confident, ambitious, and is able to represent the Center at outside meetings. 

    Other Requirements



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